User's blog

Category: Advocacy Groups

  • Referral Metrics Dashboard

    Every approved advocacy partner receives access to a real-time dashboard summarizing the impact of their outreach.

    Dashboard Features:

    • Number of Page Visits: See how many users visit your custom awareness page
    • Clicks on Trial Listings: Track interest in condition-specific trials
    • Completed Pre-Screenings: View how many users initiated or completed the screening process
    • Demographic Breakdowns: Get anonymized summaries by age group, location, and condition interest
    • Referral Source Analytics: Understand what outreach channels are working best (social media, email, QR codes, etc.)

    Key Note: All dashboard data is fully de-identified and aggregated. No individual participant names or medical details are shared with advocacy groups unless a participant explicitly consents through a HIPAA- and IRB-approved process.

  • Partnership Onboarding Process

    Partnering with DecenTrialz is designed to be seamless, transparent, and respectful of your organization’s mission and audience. Our onboarding process ensures that all advocacy partners are equipped with the tools, support, and safeguards necessary to ethically promote clinical trial opportunities.

    Step-by-Step Onboarding Flow

    1. Initial Inquiry or Outreach
      Advocacy groups can reach out through our official partnership form or be invited by our outreach team. During this step, we gather basic information about your group, its mission, and target communities.
    2. Eligibility & Alignment Review
      We review your organization’s focus areas to ensure alignment with our platform’s ethical recruitment goals, DEI principles (Diversity, Equity, Inclusion), and participant protection standards.
    3. Introductory Call with DecenTrialz Team
      A dedicated partnership coordinator will schedule a call to walk through your goals, explain how our platform works, and identify campaign possibilities tailored to your community.
    4. Compliance & Ethical Readiness Checklist
      You’ll receive a partnership packet that outlines HIPAA, IRB, and communication guidelines, with templates for co-branded awareness materials. You’ll also confirm your agreement to non-coercive, informed promotion practices.
    5. Portal Access & Toolkit Delivery
      Once approved, your team receives login credentials to our Advocacy Partner Portal (if applicable), access to recruitment toolkits, print-ready materials, and digital assets.
    6. Campaign Kick-Off or Integration Planning
      We jointly determine whether your campaign will focus on general awareness, condition-specific trial education, or direct referrals (with proper consent workflows in place).
    7. Ongoing Support & Metrics Monitoring
      Our team remains available to support your efforts with performance dashboards, training refreshers, and periodic review calls.

    Key Note: All advocacy group activities must remain fully voluntary and compliant with institutional review board (IRB) guidance. DecenTrialz does not incentivize or pressure groups to promote trials beyond what’s in the best interest of the community.

  • Types of Advocacy Groups We Support

    At DecenTrialz, we recognize the critical role advocacy groups play in connecting communities with research opportunities. Whether you’re focused on rare diseases, chronic conditions, underserved populations, or patient rights, we welcome collaboration with a wide range of organizations.

    We currently support partnerships with the following types of advocacy groups:

    • Condition-Specific Organizations: Groups focused on particular diseases (e.g., cancer, Parkinson’s, diabetes, rare genetic conditions).
    • Population-Based Advocates: Organizations serving seniors, children, veterans, BIPOC communities, LGBTQ+ populations, or people with disabilities.
    • Public Health and Education NGOs: Nonprofits promoting general wellness, health education, or research literacy.
    • Patient Navigators and Support Networks: Peer-led or professionally managed networks that guide individuals through care journeys.
    • Global and Cross-Border Advocacy Coalitions: International organizations helping increase awareness and equity in global clinical trial access.
    • Digital Advocacy Communities: Social media-based groups, online forums, or influencer networks that support health awareness or trial access.

    Key Note: DecenTrialz is open to both registered nonprofits and community-led coalitions. We evaluate potential partners based on their alignment with ethical recruitment, participant trust, and transparent health communication.